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After Big Pharma Failed, Parents Risked All To Save Daughter’s Life With Cannabis — It Worked!
“She will look at me, smile and say ‘mama.’ And that is a gift that gives me a feeling I will never be able to describe.”
In the age of medical cannabis enlightenment, Colorado is becoming a place where miracles happen. The story of ‘Super Nova’ represents the hope, challenges and lives transformed of parents desperately seeking to heal their suffering children – in a state where nascent freedom battles the entrenched forces of oppression.
The Free Thought Project obtained an exclusive interview with the mother of Nova, a beautiful 5-year-old girl born with a very rare condition called Schizencephaly. Nova’s mother, whom we will refer to as Barbara, told us about her journey from Texas to Colorado to save her daughter’s life, and even give her the gift of laughter.
Barbara is documenting Nova’s incredible story on Facebook, where she has gained more than 61,000 adoring, supportive fans. As she describes on her website,sweetsupernova.weebly.com:
“When Nova was four months old, we got the phone call on a Saturday night, from an endocrinologist, asking us if we had a minute to sit down and talk.
My world was flipped upside down when she told me more than half of my child’s brain hadn’t developed during pregnancy. Born without a pituitary gland, legally blind, and with a large unilateral cleft consisting of almost the whole right side of her brain.
She would never sit, walk, talk, and she would most likely suffer from epilepsy. She would have to take growth hormone shots every night in her stomach back and legs, she would have to take thyroid pills and steroids to keep her alive, and while there was a chance she wouldn’t have seizures, they were more likely to happen than not.”
At five months old, the first seizure happened, while Nova’s dad was giving her a bath. It only got worse from there.
“For the next two years, on top of all of her other medical complications, she would suffer from endless seizures of all kinds. She spent many of those days in status epilepticus. Status means that you are in a constant seizure and this is extremely life threatening. If she wasn’t in status, the breaks from having a seizure were few and far in between.
If there was ever a moment I got to see her smile, it was so short lived that it was becoming a challenge to remember what it was like to ever see my daughter happy. By the time she was one, Novaleigh was having over 100 seizures a day.”
The outlook for children with schizencephaly is grim. Some patients are stillborn, others are “not compatible with life” and others succumb to medication-induced organ failure. Barbara has connected with parents of children suffering from this condition, and many have lost the battle.
Philosophers stone – selected views from the boat http://philosophers-stone.co.uk
Source: http://www.philosophers-stone.co.uk/?p=17481
